Timewarp

Cancer screws with time to begin with and then 2020 has been an unbelievable timewarp on top of that. In one way I cannot believe surgery was six weeks ago, in another it seems like it might still be March or April. Even more unbelievable is that I was diagnosed four years ago. It seems … Continue reading Timewarp

The summer that never happened

2020 has been quite a year. For so many reasons. I started they year with a new job and a cancer recurrence. Then a pandemic hit. I only worked two months in the office before going to work from home. That's been weird in itself. During all of this I have been receiving chemo every … Continue reading The summer that never happened

3 Years Ago

Three years ago my life changed forever. Sometimes the last three years are just a blur in my head. That one year is truly a blur. There's a million things I don't remember. I know I sat through eight rounds of chemo, but those days aren't a strong part of my memory and that's 100% … Continue reading 3 Years Ago

Show Your Stripes

The zebra is the official symbol of rare diseases in the United States and is noted for its black and white stripes, which are central to its uniqueness. Everyone has his/her own stripes, those characteristics that make each individual distinct. While each of the more than 7,000 rare diseases are unique, there are many commonalities … Continue reading Show Your Stripes