An update, kind of

I know there has been a lot of radio silence from me. I'm still in the hospital and basically feel like I live here. It's horribly frustrating. I want to be at home. I want to feel better. Basically there is something wrong with me, but the doctors don't know what. There is a huge, … Continue reading An update, kind of

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Recovery is a long and winding road

Surgery was January 20th. I am sitting here in my hospital room where I'm starting to think I'll spend the rest of my life. The surgery was successful. My doctor is brilliant. I don't really want to go into details on what ended up being a 12 hour surgery. I have had a few setbacks … Continue reading Recovery is a long and winding road

There’s a Plan

Let's just start with I'm overwhelmed. About everything. I met with my surgeon this morning. My case was discussed at their tumor board meeting last night. Once again my scans were inconclusive. That has a lot of meanings, but basically, they only have some idea what I look like on the inside. But he does … Continue reading There’s a Plan